Programming

For millions of chronically ill people, pandemic containment never ended. Worse, it was nothing new. Yet their disappearance goes unnoticed. The disease imprisons them in the domestic sphere, where they remain invisible, where they barely exist.

This poetic suite will illustrate different facets of myalgic encephalomyelitis and the daily life of a person suffering from the disease. Each text will be written from the author's couch or bed, the two places where most of her life takes place. Once displayed on the luminous panel, the poems will move from private to public space, a move that will allow the sick body to re-enter the community, to exist there again for a few weeks.

Although myalgic encephalomyelitis affects nearly 600,000 people in Canada, the disease remains little-known to the general public and a disturbing number of health professionals. In an approach that is both intimate and political, the author hopes to shed some light on this “devastating, chronic and complex disease[i]” for which there is currently no cure.

To find out more about myalgic encephalomyelitis :

Canadian Interdisciplinary Collaborative Research Network on Myalgic Encephalomyelitis (ICanCME),https://www.icancme.ca/fr/

L'association québécoise de l'encéphalomyélite myalgique (AQEM), https://aqem.ca/

Maude Jarry

Maude Jarry holds a bachelor's degree in screenwriting and creative writing from Université de Montréal, and a diploma in thanatology from Collège de Rosemont. In 2019, she published the collection Si j'étais un motel j'afficherais jamais complet (Éditions de Ta Mère), and is completing a first novel.